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| 1 | +--- |
| 2 | +title: End of CTIS Data Collection |
| 3 | +parent: COVID-19 Trends and Impact Survey |
| 4 | +nav_order: 10 |
| 5 | +--- |
| 6 | + |
| 7 | +# End of CTIS Data Collection |
| 8 | +{: .no_toc} |
| 9 | + |
| 10 | +The US COVID-19 Trends and Impact Survey will stop inviting new respondents to |
| 11 | +complete the survey on June 25, 2022. All aggregate data will remain publicly |
| 12 | +available, and microdata will continue to be available to academic and nonprofit |
| 13 | +researchers. We provide details below on this decision and how it will affect |
| 14 | +users of the data. |
| 15 | + |
| 16 | + |
| 17 | +## Why CTIS Data Collection is Concluding |
| 18 | + |
| 19 | +CTIS was launched at the height of the global COVID-19 emergency, on April 6, |
| 20 | +2020, to enable daily syndromic surveillance at a time when testing and data on |
| 21 | +the emerging pandemic were limited. Since CTIS launched, pandemic response |
| 22 | +decision-makers from around the world have utilized CTIS’ daily data on symptoms |
| 23 | +associated with COVID-19, such as fevers, coughing or shortness of breath – as |
| 24 | +well as other topics covered in the survey from mask wearing to COVID-related |
| 25 | +job loss. See [below](#ctis-impact) to learn more about how CTIS has supported |
| 26 | +the COVID-19 response. |
| 27 | + |
| 28 | +At this point in the pandemic, reliable data to track similar topics as CTIS |
| 29 | +have become more widely available. Additionally, CTIS response rates have |
| 30 | +declined over time, and as COVID-19 has evolved, there is less need for large, |
| 31 | +daily data collection and greater need for measurement of topics that do not |
| 32 | +change significantly on a daily basis. Since CTIS is designed specifically for |
| 33 | +large-scale, daily data collection, the Delphi Group at Carnegie Mellon |
| 34 | +University (CMU), the University of Maryland Social Data Science Center (UMD) |
| 35 | +and Meta have made the decision to stop collecting new survey responses. We are |
| 36 | +working to curate and archive the tens of millions of privacy-protected survey |
| 37 | +responses received since 2020 and the aggregate estimates derived from them to |
| 38 | +ensure the data remain available to academic and nonprofit researchers. |
| 39 | + |
| 40 | +Sampling will be suspended in the United States on June 25, 2022. For details on |
| 41 | +the schedule of the international version administered by the University of |
| 42 | +Maryland, see [their end-of-survey |
| 43 | +announcement](https://gisumd.github.io/COVID-19-API-Documentation/docs/notice/end_of_survey.html). |
| 44 | + |
| 45 | + |
| 46 | +## Availability of Data After the Conclusion of CTIS |
| 47 | + |
| 48 | +We are working to archive the data that has been collected so it can continue to |
| 49 | +inform public health decisions for years to come. In line with CTIS policies and |
| 50 | +standards during the sampling period, all data will be maintained in a way that |
| 51 | +continues to preserve user privacy. |
| 52 | + |
| 53 | +All CTIS aggregate data will continue to be available after data collection |
| 54 | +stops on June 25, 2022 on [UMD‘s Global CTIS](https://covidmap.umd.edu/) and the |
| 55 | +Delphi Group at CMU’s US CTIS websites. Academic and nonprofit researchers may |
| 56 | +continue to [request access](./data-access.md) to non-public, non-aggregated |
| 57 | +survey data for their research, and current approved data users will be able to |
| 58 | +continue accessing the non-aggregated data until their current data use |
| 59 | +agreements (DUA) expire. Researchers currently holding a fully executed DUA will |
| 60 | +have the option to extend their DUA after it expires. Though no new data will be |
| 61 | +collected after June 25, 2022, [Meta’s CTIS |
| 62 | +visualizations](https://dataforgood.facebook.com/covid-survey/) will continue to |
| 63 | +be available, and until the end of 2022, [JH CCP’s COVID Behaviors |
| 64 | +dashboard](https://covidbehaviors.org/) will as well. |
| 65 | + |
| 66 | + |
| 67 | +## CTIS Impact |
| 68 | + |
| 69 | +CTIS is the largest public health survey ever conducted and has been used to |
| 70 | +inform the decisions of governments, health organizations, nonprofits, research |
| 71 | +institutions and academics around the world as they implemented their COVID-19 |
| 72 | +response efforts. The survey data has been used by over 100 stakeholders across |
| 73 | +over 60 countries. CTIS has demonstrated the positive impact that surveys of |
| 74 | +health behaviors and needs can have on improving access to health information, |
| 75 | +support, and care. |
| 76 | + |
| 77 | +For example, the Institute of Health Metrics and Evaluation (IHME) uses CTIS |
| 78 | +data to inform its COVID-19 prediction models. Via these models, CTIS mask |
| 79 | +wearing data [informed a mask mandate in |
| 80 | +Poland](https://scontent-atl3-1.xx.fbcdn.net/v/t39.8562-6/239409865_949264702522493_1292335916807550455_n.pdf?_nc_cat=106&ccb=1-5&_nc_sid=ae5e01&_nc_ohc=-e4DmQpaV94AX-57y2C&_nc_ht=scontent-atl3-1.xx&oh=00_AT8LeGMwJErh4Yfglm0ldVtg5tdVfFvGQFHbSFxfJ2HOFw&oe=6251EB4B), |
| 81 | +which contributed to a significant drop in COVID-19 cases. In the US, a Johns |
| 82 | +Hopkins University study using CTIS data [published in |
| 83 | +Science](https://www.science.org/doi/10.1126/science.abh2939) on household |
| 84 | +COVID-19 risk and in-person schooling contributed to the US CDC’s Independent |
| 85 | +Advisory Committee on Immunization Practices’ recommendation to allow |
| 86 | +vaccinations in younger children. Several research groups used CTIS data to |
| 87 | +produce forecasts for the [COVID-19 Forecast |
| 88 | +Hub](https://covid19forecasthub.org/), used by the Centers for Disease Control |
| 89 | +and Prevention to inform COVID-19 response. Overall, there have been [roughly 20 |
| 90 | +peer-reviewed research articles using the US survey |
| 91 | +data](https://delphi.cmu.edu/covid19/ctis/#publications) as of April 2022, with |
| 92 | +more currently in progress. |
| 93 | + |
| 94 | +We are grateful to the millions of Facebook users that took the survey, many of |
| 95 | +them taking it multiple times over the course of two years. Thank you as well to |
| 96 | +the many researchers, nonprofit leaders and public health officials who have |
| 97 | +ensured and continue to ensure that CTIS responses inform public health |
| 98 | +decisions around the globe. |
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